Covid Asterisk Year

I’m just going to say it: the world is going to shit. Last week saw another mass shooting at an elementary school and monkeypox. I’m reposting the pictures of the children. I know it hurts to see their bright young faces, but we can never grow complacent about gun violence. Unfortunately, experience says we will. The prior week 10 African Americans were killed in Buffalo in another racist mass shooting. Our failure to protect them is everyone’s responsibility.
Most of the children and adults killed in these massacres were people of color. NMAC is not a gun control nonprofit, but that doesn’t mean we don’t have a responsibility to speak out about the insanity of gun violence in America, particularly gun violence that is the result of racism. Our country is a house divided with little middle ground. The divisions turn mistrust and hate into violence. On one side you have anti-abortion, pro-gun supporters who want to take America back to the days where White cisgender heterosexual men sit at the top of the food chain. On the other side is everyone else. All of us understand it’s a fight for the soul of America. Our country is becoming more diverse but rather than create more seats at the table, some people want to go backwards. The good old days were not necessarily good for everyone.

Black Lives Matter saw hundreds of thousands take to the street to demand justice after too many police shootings of African Americans. We watched on video as George Floyd was killed, yet two years later what really changed? The world has witnessed too many atrocities. We are overwhelmed and numb to violence, death, and suffering. Just when you couldn’t imagine another thing, there is a monkeypox outbreak among gay men. What fresh hell is this? They say it’s not sexually transmitted, but the largest outbreaks happened at a bathhouse in Madrid. Most of the cases are among gay men.

Given the overwhelming sad news of last week, some may have missed the Centers for Disease Control and Prevention announcement that new HIV diagnoses decreased by 17% in 2020 vs. 2019. Normally this would be something to celebrate. The reality as noted in the article was the 2020 data could not account for the COVID impact on HIV services. Good news with a *COVID asterisk. Maybe that’s the best we can expect. Under impossible circumstances with no clear pathways, we did the best that we could. This is not normal. It’s not supposed to be like this.

Yours in the Struggle,

Paul Kawata

Paul Kawata
NMAC

Hiring People of Color

Change is hard. It requires great effort and lots of anxiety. Many White-led HIV and LGBTQ agencies recently hired their first person of color to lead the nonprofit. I’m very proud because so many have fought for so long for this representation. At the same time, I worry for our new colleagues’ success. Will these leaders be judged by a different standard? The unfortunate reality is “yes.”

There are no playbooks for how to be the first leader of color of a mostly White agency. I know, because I was the first person of color in too many rooms during the early days of the epidemic. Suki Ports and I would joke that we were a caucus of two at most HIV conferences. Back then, leaders of color started their own agencies because they did not see their reflection in the boards or staffs of AIDS service organizations and/or health departments.

The inequity became a flashpoint. It’s taken decades but change is happening. How should our movement support leaders of color? I talk about race because of its impact on leadership. Our movement needs to fund leadership development for people of color not because it is politically correct, but because it is the right solution. It is not easy to manage white people. I am still amazed at White fragility. Also, too many people of color living with HIV have fallen out of care. Too few people of color benefit from PrEP. I’m not saying throw the baby out with the bath water because there is lots of good. I’m just asking for leadership development to support people of color in key management roles in the organizations working to end the HIV epidemic.

There are so many sad stories of agencies who hired their first leader of color only to have it blow up in everyone’s face. Nobody wins those fights. Agencies need to do internal work before hiring their first executive of color. When you’ve hired one person of color, you’ve hired one person of color. You have not solved racism in the agency, community, or planet. Unreasonable expectations make excitement about new hires go off the rails. While I am grateful to all the health departments and community based organizations who are hiring people of color, please make sure it’s not just entry level positions.

Our community is so quick to judge when someone makes a mistake. As an executive director who has made many mistakes, I appreciate that my board understands the challenges of leading while colored and who understands that people are going to get mad because I lead with race and call out White privilege. It is a very difficult line that leaders of color must walk, particularly when they are new. Many are accused of overusing racism as an excuse but, once again, we all live in different worlds with very different realities. As a person who walks in both, some of you are not as “woke” as you think. It takes work to understand, work that too many are not willing to do.

Thank you to all the agencies committed to diversity, equity, and inclusion. It is an important next step, but there is still more to do. Too often values and systems in the workplace continue while clients and staff change. Too many HIV meetings happen where community is diverse, but government is not. Health departments are not exempt from the need to be diverse. Besides color, that diversity must include gender, gender identity, sexual orientation, and NMAC wants to talk about education.

As a highly educated individual, I think educational requirements for employment are bogus, particularly in the HIV field. Our work requires staff to know communities that you can’t learn about in textbooks. Sometimes lived experience is more important than a BA. It’s time to value community. Another reason I talk about race is that our work is missing too many. Systems led by community need to be supported and valued. Professional standards are not necessarily community standards. Existing systems retain 49% of all people living with HIV in care, but they do not reach everyone needed to end the epidemic. Once again, we need to keep the good and use new funding to figure out ways to reach those who have fallen out or are not reached by existing systems. It is time to expand our business model to include the urban market.

My plea is not only to hire people of color, but to also give them the support and resources needed to succeed. Things you take for granted may not be their reality and vice versa. Too many executives of color have experienced horror stories of donors that are friends to the movement but less than understanding on race or gender identity. Unless you’ve been there, it’s almost impossible to appreciate the trauma these meetings create, having to smile while a person with wealth says, “you’re one of the good people of color.” This really does happen. I have too many stories and too many names of donors who just don’t get it.

It comes down to dignity and respect. It’s what we all want and deserve. In the ideal world everyone would be treated like cisgender White heterosexual men while also keeping their community identity and values. Until that day, it is important to understand that our worlds are not the same. Being a leader of color is hard, especially when people say they don’t see color. There are no roadmaps for how to lead a predominately White agency as an authentic person of color. But understand you will be judged based on values that are not yours and/or you may not even know. Pass these life lessons to the next generation. Hopefully, there will be a time when no one is judged by the color of their skin. A boy can dream! Thank you for the privilege of saying difficult things.

Yours in the Struggle,

Paul Kawata

Paul Kawata
NMAC

Picking Strawberries

I am an old Asian Queen who has spent decades writing about my experiences surviving an epidemic. My musings try to be clever and hopefully funny because the topics are serious and sometimes depressing. Each week I write to thousands about our movement’s work to end the HIV epidemic in America, leaning into the tough issues like racism, homophobia, transphobia, and sexism. Frequently, I talk about my challenges with depression, especially PTSD from surviving the early days. Like too many in our work, I’ve lost more friends than I can remember. I stay in the fight to honor their lives. Regular readers know I don’t care very much about spelling or grammar. Too much attention is paid to the skills and not enough to the essence of what is being said. I always look for the kernel of truth, the writer’s willingness to be vulnerable.

I’m telling stories because May 19th is National Asian and Pacific Islander HIV/AIDS Awareness Day. Sharing my life is how I celebrate my heritage. Like many Japanese Americans who came of age after World War II, my early years were spent fighting racial stereotypes and expectations. Sadly, I still get “ching-chonged.” That’s what I call racist statements made by uneducated people who suffer from the illusion that their America is my America. White privilege is alive and not well in our work.

Not only did I grow up Japanese, I also was a Queen. From a very early age, I was one of those little boys who could not hide the fact that he was gay. It must be genetic because nobody else in my family loved Barbra Streisand. Living in the closet was not an option. Now I am grateful for this blessing, but back then it was difficult. I had no role models for what it meant to be Asian and Gay, so I struggled to figure it out by myself. That lonely little boy is still a driving force in my narrative. As you can probably tell, I’ve spent many years in therapy.

When I turned 12, I was sent to the fields to pick strawberries. We got 25 cents per flat (that was 24 boxes). It was long days and back breaking work, but don’t feel sorry for me. I got to keep the money. Back then it was the Japanese American version of summer camp. No one in my circle of friends could afford to pay to go to camp, but we could all catch the bus together to pick berries. Our mothers would pack our lunch and see us off at the stop. It did not seem unusual because I was with all my friends.

I started going to gay bars when I turned 16. I’m still amazed I wasn’t carded, but I did have a mustache. Back then most gay bars were on back streets, usually via alleys, places that no self-respecting Japanese man-child should go, and I loved it. Going to bars and meeting men felt exotic and grown up. I can still hear the thump thump beat of disco music. Donna Summer (back when we still loved her) wailing “Love To Love You Baby.” Coming to terms with being gay helped me to understand that I did not have to live the life my parents expected. I did not have to be the good Asian boy.

In the hierarchy of desire among gay men, Asian men have our “rice queens,” older White men who are trying to relive their youth during World War II. They desire the Geisha experience and prey mostly upon foreign born Asian men. I’ve disappointed too many rice queens with my big mouth and certainty.

Success in our work depends on our ability to reach communities who live in the margins, in worlds most of us will never understand. I’m telling my story to open a window into the world of an old Asian Queen who is also the executive director of NMAC for over 32 years, to be vulnerable in the world that is not kind to people like me. Fighting HIV stigma is key to the success of our work. Now you are 15 minutes closer to being culturally sensitive. Unfortunately, it takes more than reading my exploits to understand the people we need to reach. Malcolm Galdwell, in his book Outliers, says it takes 10,000 hours to become an expert on a topic. I don’t know if that’s true because I’m still on my journey. I just want to be here for the end the epidemic. Then I get to go home to the rice queens who love me.

Yours in the Struggle,

Paul Kawata

Paul Kawata
NMAC

HIV & Aging at 2022 USCHA

After three years, USCHA returns in person! And what better place to celebrate it than in Puerto Rico, the Island of Enchantment.

Among the many things the conference has to offer, and following NMAC’s work on HIV and aging, USCHA will feature a pathway focused solely on these issues. In addition, 50+ folks will have a lounge just for them. A space where they can go to chill, have fun and decompress as they network with peers. Here are some of the experiences and learnings from the last USCHA from our 50+ members:

Looking ahead to USCHA 2022 in Puerto Rico
By Joey Pons

The opportunity to learn about co-morbidities, mental health issues and well-being of older adults living with HIV was enriching and nourishing for me. To be able to network and share experiences, albeit virtually, was wonderful for all of us living and working with this population. There is no question USCHA is the most comprehensive forum for HIV knowledge in community for all of us people of color living and being affected by HIV. This year, USCHA will be held in-person, and I am very excited it will be in my homeland, Puerto Rico.

 

USCHA 2021: Informativa, útil e inclusiva
Por Silvia Silverio

Aunque virtualmente, durante USCHA pude ver e interactuar con otros líderes comunitarios, entre ellos miembros del programa “50+ VIH Fuerte y Saludable”. El tema más importante para mí fue el taller de “Envejeciendo con VIH” ya que tengo 53 años, de los cuales 35 he vivido con VIH. Aunque luzco joven y saludable creo que es importante aprender de las experiencias de los demás para seguir manteniéndome saludable y evitar enfermedades crónicas y comunes que vienen con la edad.

 

Virtual vs. In-Person Conferences
By Jeffrey Long

My experiences have been awesome with USCA/USCHA, and I’m looking forward to USCHA 2022 and hopefully attending the Biomedical HIV Prevention Summit in Chicago to bring information to clients and future clients on studies being done without Indigenous participation.

Big shout out and a huge Thank you, Sgi, in my native language.

 

 

Looking back at USCHA 2021
by Victoria Graves-Cade

I was extremely moved by Linda Scruggs testimonial from an African American women’s perspective in this HIV journey and how HIV and Advocacy gave her a voice. So often in my HIV journey I felt voiceless because the message and images did not include people who look like me, which fueled my fear. […] This was a powerful and engaging virtual conference and I so look forward to learning more, working harder, and building bridges in person with people who are committed to Ending the HIV Epidemic.

 

‘Co-existing’ with more than just HIV
by Rick Guasco

Treating HIV is about more than just treating the virus. As members of NMAC’s HIV 50+ Strong and Healthy cohort, we are empowered to advocate for a better quality of life for people aging with HIV and to press clinicians and care providers to consider all the conditions that come with living with HIV.

Summit Covid Update

NMAC was very concerned about hosting an in-person event. Transparency and proof of vaccinations were key to this year’s summit. Our relationships are built on trust and the agency felt a responsibility to be open about the impact COVID had on the Summit. Here is what I know: the one person who asked for a COVID test wrote to say they were negative. In fact, they took the test in Chicago and upon their return home to confirm. Three (3) people tested positive. No one went to the hospital or passed. Symptoms included throat irritations, coughing, some lethargy, mild cold/flu symptoms. All three have isolated. They are conducting home tests with a negative PCR follow-up before they return to work. NMAC wishes them a speedy recovery and please keep us informed.

As with HIV testing, confidentiality is important. NMAC does not have the names of any of the individuals nor did we ask for any unique identifiers. We share this information to help the field understand the impact that COVID had on a large HIV meeting with 1,033 participants. These are very uncertain times and there is no playbook.

As we’ve learned with safer sex, only abstinence was 100% safe. For the rest of us, we had to look at the relative risk we were willing to take to both have sex and be safe. There are very real reasons to stay in a COVID bubble. As an old man living with cancer, I understand. After my fourth (4th) shot, I started to rethink my strategy. Like the early days of safer sex, each of us had to figure our personal level of comfort having different kinds of sex. Kissing was my line in the sand, for me it was an essential part of the experience and not something I was willing to give up. Way too much information from grandpa. COVID, like HIV, asks us to weigh the risk and understand the consequences.

Beyond the physical, there are the psychological considerations. COVID created PTSD that we still don’t fully understand. Secretly, I judged and envied friends who jumped back quickly. Going to Chicago was my test. As an informal way to look at our movement, NMAC asked participants to wear a button with their level of comfort being hugged. Overwhelmingly, participants selected the hug button. In fact, the meeting quickly ran out of them. While not scientific, it shows how much people wanted to reconnect. To a person, everyone said they were glad we did not cancel.

I’m publicly sharing NMAC’s experience because similar challenges face our movement. It might not be about conferences, but it is about getting back to normal. COVID changed the world and I don’t think we can go back to the way things were. Trusted voices were critical in COVID and they continue to play important roles in efforts to end the HIV epidemic. Over one thousand people came to Chicago because they trusted that NMAC would not put them in unnecessary danger. That trust is the result of over 30 years of leadership and collaboration.

As we learned with vaccine hesitancy, many people do not trust the government, particularly people of color. As we work to figure out solutions for ending the epidemic, the government needs to be more transparent. COVID exposed many problems with the status quo that will hopefully get fixed before the next virus. We will never end the HIV epidemic if we continue with that same status quo. NMAC challenges our federal colleagues to use what was learned under COVID and apply it to HIV. When I talk about not being able to go back to the way things were, that includes our fight to end HIV. Nobody wants to go back to 35,000 new cases a year where 49% of the people living with HIV are not retained in medical care.

Because people were stuck at home, I got many more readers. While I appreciate everyone’s kind words, Chicago opened my eyes to my responsibility. NMAC’s platform reaches thousands of readers on a weekly basis. I never take that for granted and work to keep our movement informed. Ending the epidemic will not happen by magic. We need to fight to bring the promise of PrEP and U=U to all the communities highly impacted by HIV. Hopefully, I will see you in Puerto Rico!

Yours in the Struggle,

Paul Kawata

Paul Kawata
NMAC

What A Summit!

1,033 people attended the 2022 Biomedical HIV Prevention Summit. Thank you to everyone who made the meeting a success. After two years of isolation, I needed this meeting more than I realized. My chosen family heals my soul.


Buttons were the favorite swag. People wore them to signal their comfort hugging. I appreciate everyone who choose to wear a mask, as COVID is not over. There was only one request for a rapid COVID test and we don’t know the results. NMAC is committed to transparency. Our relationship is built on decades of trust and collaboration. That means sharing information no matter how difficult. If you got COVID please let us know so we can inform others.

Thank you for all the emails and social media posts. I agree it was good to be back together. Pictures posted on Facebook and Instagram document the diversity of our movement. A White friend shared that NMAC’s meetings were an important experience of what it means to be “other.” To be in a space where you are not the majority can be humbling and scary. It is important to understand, support, and, dare I say, love the communities our movement needs to reach. HIV introduced colleagues from different worlds and my life is so much richer. COVID gave a renewed appreciation for our friendships. Thank you for joining us in Chicago, it was amazing to be back together.


I did not speak at this year’s Summit. That was purposeful. At some point I’m retiring (this is not an announcement), so the agency works to bring new voices to the table, particularly NMAC employees. I’m proud and blessed to have staff who don’t need me. This allows me to be me. After 33 years on the job, it is still an amazing privilege to speak truth to power, to talk about race and not hide behind the “social determinants of health,” to celebrate being gay without the cover of “men having sex with men.” The Black AIDS Institute calls out being unapologetically Black in its solutions to end the epidemic and I’m there for it. NMAC works hard to make our meetings a safe space where people can be themselves. Right now, the world is very scary. It’s good to be with family during these difficult moments.

There was the public meeting and then there are the conversations that happened privately. In the past, people of color were mostly tokenized in these chats. We got to the table because Reggie Williams, Kiyoshi Kuromiya, Dennis deLeon, Marty Prairie, Janet Mitchell, and many others fought for us. NMAC’s backdoor discussions were about the Minority AIDS Initiative and the President’s national PrEP initiative. These two issues are intertwined with our fight for racial justice and health equity to end the HIV epidemic. History will judge what happened to the Minority AIDS Initiative, so we are fighting to make sure that lesson does not repeat.

I’m writing publicly about these conversations because there are millions and in the case of a national PrEP initiative, billions on the table. We desperately need a united front. This will be a test of our movement’s leadership. The fact that our struggle happens in the middle of the fight for the soul of America is not missed on me. It’s time to get busy. Right now, solutions are being considered that will impact our ability to end the HIV epidemic in America.

Yours in the Struggle,

Paul Kawata
NMAC

*Rita, thank you for the picture! We look good.

Safety is Everyone’s Responsibility

We are one thousand strong at this year’s Biomedical HIV Prevention Summit in Chicago. Here is the agenda. We look forward to seeing everyone at the Sheraton Grand Riverwalk Chicago. It’s been a long time. However, COVID is not over, and everyone must take care. While participants are required to show proof of vaccination in advance, there are no guarantees. NMAC is particularly concerned about people who are immune compromised.

Hotel staff are wearing masks at NMAC’s request. There will be outdoor spaces to eat meals; however, the temperature will be cool. Bring a jacket or sweater. If you are not feeling well, stay home or in your hotel room. Contact the conference office if you need a “free” COVID test. Anyone with COVID will be required to isolate until they test negative.

The Summit is not only an opportunity to learn the latest on biomedical HIV prevention, but also a place to build a movement. This year’s Summit includes many new leaders looking for programs that reach and keep their communities healthy. This year there are large delegations from:

  • Chicago House
  • Arianna’s Center
  • Indian Health Service
  • NAESM
  • NMAC’s Young Gay Men of Color PrEP fellows
  • NMAC’s Storytelling Project

President Biden put forward a budget recommendation for a new national PrEP plan. Conversations about the plan and PrEP will likely dominate the gathering. While NMAC is very thankful for the President’s plan, we ask our movement to consider the following:

  1. Differences in opinion about PrEP program priorities
  2. Very heavy lift in Congress

NMAC is concerned that current PrEP programs miss too many people of color. The data say that 42% of the new cases of HIV are among African Americans, yet only 8% of the people on PrEP are Black. 29% of new cases are Latinx while only 14% of the people on PrEP are Latinx. White Americans are 28.5% of new cases of HIV and 63% of the people on PrEP. I was challenged figuring out PrEP utilization for Native Americans, Alaska Natives, Asians, Native Hawaiians, or Pacific Islanders. How do we fix PrEP for communities of color?

Even if community agrees on a pathway forward, there is still a very heavy lift in Congress. As part of his FY23 budget recommendations, President Biden put $213 million in mandatory spending for a new national PrEP Initiative. Over the next 10 years this program is budgeted at $9.8 billion. While I believe our movement has some of the best policy staff working the Hill, the “mandatory” nature of this spending makes it a unique challenge to pass in Congress.

In other words, there is plenty to discuss and lots of concerns. Special thank you to Gilead, ViiV, and MISTR for their support of the meeting, the faculty for sharing the latest information on biomedical HIV prevention, the Chicago Host Committee, attendees for traveling during this confusing time, and NMAC’s staff for making this meeting a reality.

I just got my fourth booster, so I’m feeling ready. For everyone staying home, I completely understand. We are trying our best to keep everyone safe but, as we’ve learned from safer sex education, safety is everyone’s responsibility. We are not just looking out for ourselves; we must also care for other attendees.

 

Yours in the Struggle,

Paul Kawata

 

 

 

 

 

Paul Kawata
NMAC

We’re Coming Back!

Like so many organizations, NMAC has worked remotely over the last two years. Recently, we held our first in-person all staff retreat. It was a trial run for the in-person opportunities and challenges at the 2022 Biomedical HIV Prevention Summit. Honestly, I was a little nervous. It’s been 24 months of seeing everyone only in those little zoom boxes. How would it be to come together? Would we find our groove or has the work paradigm completely transformed?

I’m sharing because, in three weeks, we are gathering in Chicago for the 2022 Summit. For many of us, this will be our first big gathering. It is hard to know what to expect and initially the meeting might be very socially awkward. With the BA2 variant, there are real concerns. As we learned during the early days of safer sex education, there are no guarantees. Condoms offered a high level of protection, but they are not fool proof. Please use good judgement. If you are not feeling well, stay home or in your hotel room.

Here’s the thing about the in-person all staff meeting: after some initial awkwardness, it was great to see everyone. We easily fell back into our groove and realized how much we missed each other. At the same time, we learned how COVID has changed the nature of how we work. NMAC has the privilege of working remotely and I don’t think we will be going back regularly into an office. Being together was valuable and I missed the unscheduled interactions with staff, but the commute is hell. If anything, we are more productive working from home.


Here are some of the guidelines to help make the Summit safer for everyone:

  1. Everyone must register and show proof of vaccination in advance of attending the meeting. Due to the need to confirm vaccination for each registrant, there will be no onsite registration. Registration will close and vaccine confirmation must be done by Friday, April 8. Vaccine confirmation must be done on this website.  If we do not receive vaccine credentials, registrants will not be allowed entry,
  2. Masks are encouraged but not required. The Summit will follow the City of Chicago’s COVID requirements. Nobody should be “shamed” if they choose to wear a mask.
  3. Rapid tests are available for free onsite. If you are not feeling well, please stay home or in your hotel room. Contract the conference office for the test.
  4. Hugs OK, Elbow, or Do Not Touch indications will be written on the bottom of name tags. Please honor attendees’ boundaries and understand we are all in difference places,
  5. NMAC has a COVID protocol should anyone get sick. Contact the conference office for support. Our policy requires anyone who tests positive for COVID to isolate until they get a negative test.
  6. NMAC will support additional hotel nights for scholarship recipients who test positive for COVID. Other attendees will be required to cover their own costs.

We will be 1,000 strong in Chicago. There are critical issues and organizing needed to move our work. COVID has been a real setback and there are many unknowns about the current state of the epidemic. Has COVID isolation resulted in more or less HIV? Looking at the STD numbers is very concerning. Getting ready for Chicago might create some anxiety. That should be expected. It’s been a long time since we’ve been together. After two years of zoom calls, I’m not sure how to act around real people whom I can hug. Like most things in our work, we will get through this together.

Yours in the Struggle,

Paul Kawata

 

 

 

 

 

Paul Kawata
NMAC

Dear President Biden

President Joe Biden
The White House
Washington, DC

Dear President Biden,

Thank you for your steady hand during these difficult times. With the world on fire, it is easy to become overwhelmed and scared. Your FY23 budget sent an important message about your commitment to end the HIV epidemic. Your initial commitment or $213 million in mandatory funding to Pre-Exposure Prophylaxis (PrEP) Delivery Program to End the HIV epidemic is a critical step to bring the promise of PrEP to all communities highly impacted by HIV. And, most importantly, thank you for your overall commitment for $9.8 billion in funding over 10 years to guarantee PrEP at no cost for all uninsured and underinsured individuals.

Disappointingly, the request misses an opportunity to combat record high STDS like gonorrhea, chlamydia, and syphillis. NMAC strongly urges Congress to supplement the President’s request with significant additional resources to combat rising STD rates and for the Administration to support this increase through the Congressional process.

Now the HIV community must work quickly with Congress to pass the budget. With all the divisions on the Hill and the midterm elections this fall, our window is short. Passing the budget will be a very heavy lift and there are no guarantees. NMAC is ready and willing to do what it takes; however, this needs to be a team effort that includes national, state, and local partners. NMAC will prioritize community and the important voices of people of color, particularly those living with HIV.

In anticipation of your budget, NMAC’s board of directors authorized spending reserve funds to support additional beltway professionals. We are going full Washington, DC in partnership with AIDS United, NASTAD, NCSD, and the AIDS Institute. For a small minority organization like NMAC, this is a big deal. I am so proud the board was willing to take this risk with no guarantees. We sold our corporate headquarters a few years back, the money from this sale created our rainy-day nest egg. NMAC is betting a portion of our future on passing the FY23 budget. That’s how much we believe in this administration and our movement.

A PrEP delivery program must work hand in glove with our efforts to Ending the Epidemic, but the devil is in the details. As the data show, African Americans make up 45% of the new cases of HIV, yet they are only 8% of the people on PrEP. In the near term, NMAC will put together a series of recommendations on program implementation, but right now we wanted to say thank you. I came to Washington in 1985 to fight an epidemic that was killing people I loved. I never imaged I would still be here in 2022. Passing your FY23 budget is an important next step for our work to end the HIV epidemic. Thank you for believing in the science of PrEP and the need to bring this important tool to all the communities highly impacted by HIV.

Yours in the Struggle,

Paul Kawata

 

 

 

 

 

Paul Kawata
NMAC

National Native HIV/AIDS Awareness Day

March 20 was National Native HIV/AIDS Awareness Day. On this important day, NMAC stands in solidarity with Native communities as they work to end the HIV and Hepatitis epidemics. As part of NMAC’s 35th Anniversary, I wanted to share the story of Ron Rowell. Ron was not only the founder of the National Native American AIDS Prevention Center, he was also an original NMAC board member. Ron told his story as part of the 2020 International AIDS Conference. Back in the ’90s, we were part of a cabal of people of color working to fight and collaborate with the Centers for Disease Control and Prevention as they built the CDC’s community planning process. Other leaders included Reggie Williams from the National Task Force on AIDS Prevention and Charlene Dora Ortiz from San Antonio. We were a powerful and hell raising coalition of people of color who understood the value of collaboration.

NMAC is fortunate to work with so many leaders in the American Indian, Alaska Native, Native Hawaiian and Pacific Islanders.


Christopher J. Paisano (above left) is NMAC’s program coordinator for Indian Country. His email is CPaisano@nmac.org or 202-997-0396. Christopher is a member of the Navajo Nation and lives in Fort Defiance, Arizona –  the Navajo Nation. He is Kinlichiiní (Red House People Clan) and born for Tohtsoni (Big Water People Clan). His maternal grandfather’s clan is Taachiiní and his paternal grandfather’s clan are Haatbani Hanuu from Laguna Pueblo. Brenda Hunt (above right) is a long term NMAC board member from the Lumbee Tribe of North Carolina.
American Indian and Alaska Native CAP Members

Here is the American Indian and Alaska Native Community Advisory Panels (CAP). Its members include (from left to right by row): Kerry Hawk Lessard (upper left), of the Shawnee tribe and the Executive Director of Native American Lifelines;  Savannah Gene (upper middle), a proud member of Diné Nation. She is Totsóhnii (Big Water Clan), born for Hashk’áánhadzohí (Yucca Fruit Strung Out in a Line Clan). Her maternal grandfathers are Ta’neeszahnii (Tangle People Clan) and her paternal grandfathers are Tł’izíłání (Many Goats Clan). Next is Sheldon Raymore, a member of the Cheyenne River Sioux Tribe.

In the second row is Kurt Begaye, Diné Nation who is Hashk’ááhadzohí (Yucca Strung Out on a Line Clan), born for Tó’aheedliinii (Water Flow Together Clan). His maternal grandfather is Naashgalí Dine’é (Mescalero Apache People), and his paternal grandfather is Tł’ááshchí’í (Red Bottom People). Finally, we have Greg Gurrola, of the San Carlos Apache Tribe is from Phoenix, AZ, and currently lives in San Diego, CA.
Native Hawaiian and Pacific Islander CAP Members

Our Native Hawaiian and Pacific Islanders CAP includes (from left to right by row): Vince Aguon from Guam; Keiva Lei Candena, a Native Hawaiian born in Hawaii and currently lives in the San Francisco Bay Area; Kuane Dreier from Hawaii; Cathy Kapua from the leeward side of O’ahu, Hawaii; Carolyn Kualii who is Hawaiian/Apaches; Bianka Tasaka, Mahu Wahine and Mahu Kane; and David Utuone, a gay Sāmoan HIV advocate who has been living with HIV since 2014.

I honor and thank these leaders. Our movement is very diverse. Our work to end the HIV epidemic must be a big tent.

Yours in the Struggle,

Paul Kawata

 

 

 

 

 

Paul Kawata
NMAC